Since we started our CRELD1 journey over four years ago, we have been blessed to find a small community of families that have had their children diagnosed with the same condition. It was only by pure chance that we were introduced to the CRELD1 Warriors Facebook Group, which now has 23 members.
It is through their love, support and stories that we remain hopeful for a better life for Alfie, and all the other children that have been diagnosed. We also forever remember our dear Warriors that we have sadly lost - Hayden, Samuel, Lola and Ayla.
CRELD1 is extremely rare, but you are not alone. Welcome to our family! Here you can meet some of our CRELD1 Warriors.
Daxton is such a happy and determined little soul with a cheeky grin. He loves to roll around on his bed and play with his toys and especially loves cuddles with his family.
Samuel was our happy little man with the bright blue eyes. He filled our lives with love and is now smiling over us from above.